Anna Middleton, Caroline F Wright, Katherine I Morley, Eugene Bragin, Helen V Firth, Matthew E Hurles, Michael Parker
This article explores the possibility of returning raw, uninterpreted DNA sequence data to research participants who donate their DNA for genomic research. The article argues that when direct to consumer genomics services become more widely available (and can be endorsed by independent health professionals and genomic researchers alike), the return of such raw data could become a realistic proposition. Attitudes of over 7000 members of the public, genomic researchers, genetic health professionals and non-genetic health professionals were surveyed to explore what they might do with their own raw genomic data, if given access to it.
Journal of Medical Ethics